Childhood Peroxisomal Project

A Research Foundation for Children with Peroxisomal Disorders

Children with peroxisomal diseases lack plasmalogen lipid molecules because these critical molecules are made inside the peroxisomes. As plasmalogens are involved in the function of the lungs, eyes, muscles, and nerves, they are crucial for quality of life.

Due to the extreme time sensitivity of these diseases, this project is the institute’s first feature program. All children and families affected by these diseases are welcome to participate – Dr. Goodenowe wants to ensure that any child suffering from peroxisomal disease can access plasmalogen supplementation and advanced biochemical monitoring free of charge and as soon as possible.

Why? Because it is the right thing to do! 

 

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Free Program

Would you like to get started? There are absolutely no “strings attached.” Simply fill out this form, and we will be in touch for the next steps! We can arrange an introductory call to answer any of your questions and explain more about the blood testing, or we can simply send you the plasmalogen supplements directly to you at no cost – for affected children, their parents, and siblings.

Dr. Goodenowe’s team can contact your doctor to provide information on the plasmalogen supplements and blood testing. Hundreds of doctors around the world are already using Dr. Goodenowe’s plasmalogen supplements in people of all ages, including as part of clinical trials such as the recently completed clinical trial with Dr. Sheldon Jordan, a board-certified neurologist MD; and Dr. Cynthia Keller, a pediatrician who is our lead advisor for this project.

Dr. Goodenowe believes that there is no one-size-fits-all solution. He is offering his advanced lab testing free of charge to gain critical insights into the biochemical status of the affected children. We will provide the blood test collection kits at no cost – you can either take it to your participating doctor, or we will help arrange a home blood draw for you. 

We look forward to hearing from you to see how we can best help!

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Let us know if you would like to contribute to the research project. We will contact you with more information. There is no obligation - you can decide to join at any time, or you can choose to only receive the plasmalogen supplements.
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ABOUT DR. GOODENOWE

Dr. Goodenowe began his academic training in the late 1980s. In the early 1990s, his academic focus became learning the science of chemistry, biochemistry, and, more specifically, neurochemistry. During his academic tenure, he learned how to design and execute research studies investigating the biochemical mechanisms responsible for various brain diseases. He soon realized that the technology available to investigate human biochemistry could not comprehensively measure all of the biochemicals in blood and cells necessary to determine the biochemical mechanisms of disease. During the course of conducting research into neurodegenerative diseases, Dr. Goodenowe serendipitously became aware of children affected by peroxisomal insufficiencies and is the original inventor and neurochemist behind the current drugs being studied today.