If you or someone you know has a child with a plasmalogen deficiency (or other pediatric disorder) and would benefit from the support of a community, please check out our Facebook group. The group is moderated by Nicole Miranda (the mother of Thatcher who has RCDP).
Click here to go to the group: Pediatric Plasmalogen Deficiencies & Related Disorders Support Group | Facebook
If you have any questions regarding this community, please contact Nicole or the Dr. Goodenowe Team at: pediatric.disorders@drgoodenowe.com